Personal stories

We hope that by reading about the journeys of others living with follicular lymphoma, that this can provide you with inspiration and hope, especially during difficult times, as well as a sense of community. We encourage you to share your own story, as it may help others going through similar experiences.

Personal stories

Don’s story

My name is Don, and I am 68 years old. I live in Phoenix, Arizona and am married. The picture is of me aged 25 on a cross country bike ride.

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Photo of Michaela, an FL patient
Personal stories

Michaela’s story

My name is Michaela, and I am a 55 year old trans woman living in England. I was diagnosed in 2018 and been in remission for 5 years.

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Caroline in a hospital bed having treatment for cancer
Personal stories

Caroline’s story

I’m Caroline from the United States. I am a wife, mom, dog lover, and three-time stage 4 non-Hodgkin’s follicular lymphoma thriver.

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Personal stories

Paul’s story

I’m Paul from Scotland, married with 3 daughters and recently 2 cute grandbabies. I am currently in a partial remission stage.

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Personal stories

Paul’s story

My name is Paul and I’m from the UK. I was diagnosed with follicular lymphoma, stage IIIA, in October 2022.

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Personal stories

Carolyn’s story

My name is Carolyn and I live in the United States. I’m a 28 year old teacher and I am stage 4 follicular lymphoma.

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Personal stories

Raquel’s story

My name is Raquel, and I’m from Barcelona, Spain. Seven years ago, my life took a major turn when I was diagnosed with follicular lymphoma.

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Personal stories

Nicola’s story

I’m Nicola Mendelsohn, the founder and chair of the FLF, and I wanted to share my story of being diagnosed with follicular lymphoma.

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Personal stories

Nicky’s story

I’m Nicky, from Australia, 42 years old, married with two amazing kids. I’m studying to be a Clinical Nutritionist with the plan to help FL Patients learn to eat well and live well.

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Personal stories

Ben’s story

My name is Ben, and I was born in Australia, however I have been living in London, England for the past 17 years. I was diagnosed with follicular lymphoma in 2017 and underwent chemotherapy treatment in 2017/2018. I have been in remission since then.

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Personal stories

Elaine’s story

My name is Elaine and I live in Israel. I was born in Manchester, England, but I emigrated to Israel in 1972 aged 17. I am a mother of three and a grandmother of eight. I retired three years ago.


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Personal stories

Paul’s story

My name is Paul and I live in the UK. I have stage 3 FL and I found out about my diagnosis at work over the phone following an ultrasound and then CT scan.

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Personal stories

Wendy’s story

My name is Wendy. I am a 59 year old retired mechanical engineer and I live in the United States with my spouse, special needs daughter, and dog. I have also raised three adopted children.

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Personal stories

Chrissy’s story

My name is Chrissy and I live in the United States. I love my hubby/caretaker and we enjoy car shows, boating, and our animals.

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Personal stories

Emily’s story

My name is Emily, and I am British and live in Oman (Middle East). I was first diagnosed after a bit of a long journey of investigating persistent nausea and gastro issues.

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Personal stories

Nichola’s story

I am 48 years old, live in England and am married with 2 daughters, aged 14 and 17. I am an assistant head in a primary school.

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Personal stories

Anna’s story

My name is Anna and I live in Spain. My journey with FL started in October 2018 when I was 34. When the year started, I only had a strong wish for that year: to start a family.

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Personal stories

Steve’s story

My name is Steve and I live in Australia. I recently retired after 40 years in the IT industry (and by recently I mean it sort of all was decided upon last Monday) I am divorced with three adult children.

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We hope that the patient stories on this page have been helpful. If you would like to share your story, we warmly welcome you to do so!