Personal stories

We hope that by reading about the journeys of others living with follicular lymphoma, that this can provide you with inspiration and hope, especially during difficult times, as well as a sense of community. We encourage you to share your own story, as it may help others going through similar experiences.

Katie in a hospital gown
Personal stories

Katie’s story

I’m Katie from the United States. I am a 41-year-old mom of 2 boys and a 16 year cancer survivor. I have recently been diagnosed with FL.

Read More »
Don Castle - hoosier pass, colorado
Personal stories

Don’s story

My name is Don, and I am 68 years old. I live in Phoenix, Arizona and am married. The picture is of me aged 25 on a cross country bike ride.

Read More »
Photo of Michaela, an FL patient
Personal stories

Michaela’s story

My name is Michaela, and I am a 55 year old trans woman living in England. I was diagnosed in 2018 and been in remission for 5 years.

Read More »
Caroline in a hospital bed having treatment for cancer
Personal stories

Caroline’s story

I’m Caroline from the United States. I am a wife, mom, dog lover, and three-time stage 4 non-Hodgkin’s follicular lymphoma thriver.

Read More »
Paul Nicol
Personal stories

Paul’s story

I’m Paul from Scotland, married with 3 daughters and recently 2 cute grandbabies. I am currently in a partial remission stage.

Read More »
(C) Blake Ezra Photography 2023 @BlakeEzraPhoto info@blakeezraphotography.comNot to be reproduced without written permission.
Personal stories

Paul’s story

My name is Paul and I’m from the UK. I was diagnosed with follicular lymphoma, stage IIIA, in October 2022.

Read More »
carolyn-2-nov-23
Personal stories

Carolyn’s story

My name is Carolyn and I live in the United States. I’m a 28 year old teacher and I am stage 4 follicular lymphoma.

Read More »
raquel-3-aug-2023
Personal stories

Raquel’s story

My name is Raquel, and I’m from Barcelona, Spain. Seven years ago, my life took a major turn when I was diagnosed with follicular lymphoma.

Read More »
max-lacome-maxlacome-com-nicola-mendelsohn
Personal stories

Nicola’s story

I’m Nicola Mendelsohn, the founder and chair of the FLF, and I wanted to share my story of being diagnosed with follicular lymphoma.

Read More »
nicky-g-1
Personal stories

Nicky’s story

I’m Nicky, from Australia, 42 years old, married with two amazing kids. I’m studying to be a Clinical Nutritionist with the plan to help FL Patients learn to eat well and live well.

Read More »
ben_flf_story
Personal stories

Ben’s story

My name is Ben, and I was born in Australia, however I have been living in London, England for the past 17 years. I was diagnosed with follicular lymphoma in 2017 and underwent chemotherapy treatment in 2017/2018. I have been in remission since then.

Read More »
elaine_flf_story
Personal stories

Elaine’s story

My name is Elaine and I live in Israel. I was born in Manchester, England, but I emigrated to Israel in 1972 aged 17. I am a mother of three and a grandmother of eight. I retired three years ago.


Read More »
flf_pauls_story
Personal stories

Paul’s story

My name is Paul and I live in the UK. I have stage 3 FL and I found out about my diagnosis at work over the phone following an ultrasound and then CT scan.

Read More »
wendy_story_flf
Personal stories

Wendy’s story

My name is Wendy. I am a 59 year old retired mechanical engineer and I live in the United States with my spouse, special needs daughter, and dog. I have also raised three adopted children.

Read More »
flf_pattientt_story
Personal stories

Chrissy’s story

My name is Chrissy and I live in the United States. I love my hubby/caretaker and we enjoy car shows, boating, and our animals.

Read More »
flf_emily_sorry
Personal stories

Emily’s story

My name is Emily, and I am British and live in Oman (Middle East). I was first diagnosed after a bit of a long journey of investigating persistent nausea and gastro issues.

Read More »
flf_nicolestory
Personal stories

Nichola’s story

I am 48 years old, live in England and am married with 2 daughters, aged 14 and 17. I am an assistant head in a primary school.

Read More »
flf_annestory
Personal stories

Anna’s story

My name is Anna and I live in Spain. My journey with FL started in October 2018 when I was 34. When the year started, I only had a strong wish for that year: to start a family.

Read More »
steves_story
Personal stories

Steve’s story

My name is Steve and I live in Australia. I recently retired after 40 years in the IT industry (and by recently I mean it sort of all was decided upon last Monday) I am divorced with three adult children.

Read More »

We hope that the patient stories on this page have been helpful. If you would like to share your story, we warmly welcome you to do so!