David’s Story
I try to live in the moment and be grateful for what I do have. I know the likelihood is that I will need treatment further down the line, but I try to remain as positive as possible and feel reassured that there are teams across the NHS and beyond who will be there to support me when it’s needed.
In April I will be running the London Marathon helping to raise funds for the Follicular Lymphoma Foundation.
Melissa’s Story
The surgeon said, ‘so the diagnosis is follicular lymphoma’ and I just sat there listening to him talk. Then I asked what kind of doctor I would see and when he said ‘an oncologist’ that’s when it hit. Oh wow. That’s a cancer doctor. I have cancer.
Brandon’s Story
I found a lump on my right thigh and was worried it would be a hernia. I went to the doctor and discovered I had a cancerous lymph node. After diagnosis, it felt heavy. Like a shadow descended over my life.
Vikki’s Story
I remember everything about the day I was diagnosed with FL. And I remember my husband crying for the first time since our sons’ births.
Nicolas’s Story
My name is Nicolas, and I am from Omaha, Nebraska in the United States. I am at stage 3 FL and was diagnosed in 2024. I am a Union Ironworker, and I live with my girlfriend and our six-week-old baby girl.
Lori’s story
My name is Lori and I’m from Alabama, USA. I have stage 3A FL an was diagnosed last year, 2024. Once you are diagnosed and have a clear plan, you will get in a fight mode. It’s important to be aware that for some people the full realization of what you’ve been through may not hit you until after treatment is over.
Angela’s story
My name is Angela. I live in New York State in the US with my husband of 37 years, who has always been my rock. I have Stage 4, Grade 3A. Over the past year, I’ve come to the realization that “living” and “existing” are two completely different things. This will surely inform my future treatment decisions. I want to live!
Ben’s story
Hi, my name is Ben, and I live in Eastbourne on the south coast of the UK. I am at stage 4 FL and was diagnosed in 2021. When I found out about my diagnosis it was a bittersweet moment as I knew what I was facing, which was a relief, but hearing the words “incurable” is very hard to comprehend, not just for me but for my loved ones.
Thomas’s story
My name is Thomas and I’m from Ireland. I am at stage 4 with Fl and was diagnosed in November 2024. I often hear the experience of living with FL referred to as a journey. For me, cancer is not a journey.
Lora’s story
My name is Lora, and I am from the United States. I was diagnosed in 2022 and am currently at stage 3 follicular lymphoma. I knew something was going on with me, but I just wasn’t sure…