When FL Changes: Understanding Progression & Transformation (new date 28.4.25)

We asked you! When we reached out for your input on our March webinar topic, follicular lymphoma (FL) progression and transformation emerged as one of the most requested topics. 

Join us for an informative webinar where expert clinicians and individuals living with FL come together will discuss the signs, treatment options, and what to expect.  

Whether you’re navigating FL yourself, or supporting or caring for a loved one, this session will provide vital knowledge, expert guidance, and a personal story of resilience. Connect with others through this engaging discussion and ask your questions.   

  • Date: Monday 28th April
  • Time: EDT: 09:00–10:00 | BST: 14:00–15:00 | AWST: 21:00–22:00
  • Free + open to everyone! Whether you’re living with FL, a family member, caregiver, or healthcare professional, this webinar will provide valuable knowledge and an inspiring personal story 

The webinar will cover: 

  • The Science of FL Progression & Transformation: Leading experts will break down why and how FL can progress, key warning signs and the latest advancements in monitoring and treatment. 

 

  • Living Through Transformation: Hear from someone who has experienced FL transformation—their journey, treatment decisions, and how they adapted emotionally and physically. 
     
  • Taking Charge of Your Care: Learn how to engage in shared decision-making with your healthcare team 

 

  • Live Interactive Q&A: Have your questions answered in real time by our expert panel 

 

  • Connect with the FL Community: Join others in the FL community, share experiences, and gain support from those who truly understand. 

 

  • Read more about when your FL changes (transforms), by following the link here. 

 

Don’t miss this opportunity to engage, learn, and ask your questions on FL progression and transformation.  

The webinar will be recorded and published on our website. Watch our past webinars here.   

Stay tuned for more webinars covering other highly requested topics in the coming months! 

Dr Mitchell Smith – Chief Medical Officer, Follicular Lymphoma Foundation 

Dr Mitchell Smith has an extensive educational background, having earned his Medical Degree and PhD from Case Western Reserve University School of Medicine in Cleveland, OH. He has also completed several residencies and fellowships, including a Fellowship in Medical Oncology at Memorial Sloan-Kettering Cancer Centre in NY. Dr Smith’s career has also spanned many years and institutions, including serving as Director of the Lymphoma Program at Fox Chase Cancer Centre and Director of the Lymphoid Malignancy Program at the Cleveland Clinic. Join him as he shares his expert insights throughout our engaging webinar series.  

 

Dr Carla Casulo, MD, Associate Professor of Medicine, and Assistant Director of Cancer Research Training and Education at the Wilmot Cancer Institute – Rochester.

Dr. Casulo is an international expert and clinician-researcher in all forms of lymphoma, best known for her pivotal work in follicular lymphoma. She also has an expertise and passion for young adults with lymphoma and Hodgkin lymphoma. Dr. Casulo’s research focuses on identifying risk and individual prognosis to address patient’s treatment needs and sequence of therapy using a precision approach. Dr. Casulo uses real world, large patient datasets and clinical trials to discover patterns of therapy, new treatments, and ways to improve survival for patients with lymphoma.

Dr Casulo is a Steering Committee Member and Chair of the Women in Lymphoma Global Organization. She is a passionate mentor of students and trainees, and the recipient of numerous teaching and mentoring awards, including the University of Rochester School of Medicine and Dentistry Trainee Academic Mentoring Award in Clinical Programs.

Fiona McMullen, Follicular Lymphoma Patient

After being told by a doctor that a lump in her neck was ‘nothing to worry about’ 2 years before,
Fiona received the shock diagnosis of Follicular Lymphoma in 2015. One of the biopsy
procedures that followed left her without the use of her arm for 4 months due to a severed
nerve. Gradually things settled and she came to accept that ‘watch and wait’was a common
management approach to indolent cancer.

However, 2 years later, when a painful lump appeared and she was weighed down with fatigue,
Fiona knew something wasn’t right. It took some convincing for the haematologist to refer her
for scans, but they soon revealed that the FL has transformed to an aggressive blood cancer,
Diffuse Large B-Cell Lymphoma. 6 months of R-CHOP treatment and 2 years of Rituximab
maintenance followed.

Fiona has since returned to ‘watch and wait’ and knows that further treatment is likely at some
stage. The lesson in taking notice of your body and advocating for your own health care hasn’t
been forgotten. In the meantime, she enjoys life and feels hopeful for the future.

This webinar series is supported by an educational grant from Genmab US, Inc and AbbVie and sponsorship from BeiGene USA, Inc., and  Novartis. All of the above have had no influence on, control of, nor input into the development or performance of the webinar series.Â