Still in the conception stage, the Precision Medicine Program (PMP) is a ground-breaking initiative aiming to mobilize the patient community to fuel a targeted acceleration in FL research and clinical development.
The PMP will leverage real-world data, linking clinical, patient-reported and molecular data to promote new directions in FL research and will drive biopharma and industry drug development. Putting the patient at the center of what we do, we maximize our chances of success in improving the care, and longevity of every affected patient.
The goal of this program will be to improve treatment strategies and to speed up the development of new treatments and ultimately a cure for every FL patient.
The PMP will aim to provide evidence-based aggregate information to doctors and patients which will help them to make personalized treatment decisions. Being able to predict and reduce treatment side effects, will allow patients to make informed decisions that balance both effectiveness and toxicity. Creating a better understanding of the disease will reduce the time it takes for new treatments to be developed.
Delivering the PMP will accelerate finding a cure. The aim is to develop a precision medicine model in which a person’s specific genomics, immune system and microenvironment are considered to determine the optimal treatments for that patient.
Together with our partners, we engaged with clinicians, researchers, life sciences and patients across the globe to identify through consensus the top unmet needs in FL. The key objectives identified for the PMP are:
Understand better the biology of FL (which can vary from patient to patient)
Optimize treatment regimens and sequencing – knowing what FL treatments and in which order will give the best results
Profile and predict treatment toxicity
Develop surrogate endpoints (an indicator used to predict if a treatment works)
Generate real-world data
My great hope is that I will stay fit and healthy for long enough to allow medical science to crack the code!
Caitlin Wormer, Follicular lymphoma patient diagnosed in 2018
We will be keeping you updated on our progress through our community communications, this website and our social channels about when this project will be launching so watch this space.
We’d love to hear from you if you’re interested in learning more about the FLF and our initiatives. We welcome your feedback, support, and collaboration in any way you can.
If you want to find out more about the FLF and any of our research programs, please contact us at info@theflf.org.
