Every experience of follicular lymphoma is different. Whether you’re newly diagnosed, on “watch and wait”, in treatment, in remission or living with relapsed disease, your experiences can help improve understanding of what it really means to live with follicular lymphoma today.
That’s why we’re inviting people around the world to take part in the FLF Global Patient Survey 2026, our largest survey of the year.
The survey goes live on 28 September 2026, 12pm BST, 11am UTC, 1pm CEST, 7am ET (EDT), 5am MDT
The survey is:
The more people who take part, the deeper our understanding of the challenges, priorities and experiences of the global follicular lymphoma community becomes.
Last year, more than 1,000 people living with follicular lymphoma shared their experiences. Their responses revealed important insights into diagnosis, emotional wellbeing, treatment decision-making and access to care, helping us better understand the realities of living with FL.
Your experiences help ensure that patient voices remain at the centre of research, education and support programmes.
When patients take the time to share their experiences, it creates evidence that can be used to drive change. Previous FLF Global Patient Surveys have helped us:
Every response helps build a clearer picture of the real-world challenges faced by people living with FL.
This year’s survey builds on what we learned in previous years and explores several new areas that patients have told us are important.
Alongside questions about treatment access, newer therapies, support needs and living with follicular lymphoma, the 2026 survey includes a greater focus on:
These new questions will help us develop a richer understanding of what matters most to people living with follicular lymphoma today.
"Every year, the FLF Global Patient Survey helps us better understand the experiences, priorities and challenges of people living with follicular lymphoma around the world. The insights gathered through previous surveys have directly influenced our patient programmes, educational resources and research priorities. By taking part, you're helping ensure that the patient voice continues to shape the future of follicular lymphoma care, support and research."
If you are living with follicular lymphoma, we’d love to hear from you.
Every response helps us better understand the real-world impact of FL and contributes to a growing body of patient-led evidence that can inform support, education, advocacy and research.
The survey goes live 28 September 2026, 12pm BST, 11am UTC, 1pm CEST, 7am ET (EDT), 5am MDT and closes on Monday 19 October 2026.
Discover what we learnt from the 2025 Annual Global Patient Survey. More than 1,000 people from all around the world took part sharing their experiences across different stages of the disease.
Patient stories help others like yourself to feel inspired. Hearing about someone else’s journey with FL can be empowering and often contributes to the sense of community between FL patients.Â
Nobody should face follicular lymphoma without answers, hope or support. Your donation could help us continue to improve patient resources and fund research that accelerates progress towards cure.
