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Make your voice heard in the 2025 Global Follicular Lymphoma Patient Survey

Your voice matters

The Follicular Lymphoma Foundation (FLF) is launching the 2025 Global Follicular Lymphoma Patient Survey, our largest survey of the year, to capture the lived experiences of follicular lymphoma patients worldwide.

The survey is completely anonymous and takes just 5-10 minutes to complete.

This is your opportunity to ensure the experiences of people living with follicular lymphoma directly shape the future of care, research, and patient support worldwide.

Your input is vital

Too often, the patient perspective is underrepresented in research and policy. This survey ensures that the voice of follicular lymphoma patients is front and center in shaping future care and innovation.

By taking part, you can help:

  • Highlight the real challenges of living with follicular lymphoma
  • Inform how treatment decisions and access are supported
  • Identify unmet needs in care and support
  • Ensure patient priorities are central to research and innovation

 

Your insights will help identify gaps, highlight priorities, and ensure improvements in how follicular lymphoma is treated and supported globally.

What you need to know:

  • The survey is anonymous
  • It takes just 5–10 minutes to complete
  • Available in English and Spanish
  • Open 29 September – 19 October 2025

 

Take part today and add your voice. Spanish and English version can be found here:

Learn more

Watch this short video from Dr Mitchell Smith, FLF’s Chief Medical Officer, to hear why your voice matters.

To view with Spanish subtitles, please click here

Why it matters

The results will directly inform FLF programs, guiding our work to ensure that patient needs are reflected in research, advocacy, and support initiatives. Together, we can advocate for better treatments, greater access, and more patient-centered support.

Thank you

Thank you to everyone who takes part. Your voice truly makes a difference for the FL community.

This survey has been developed by the Follicular Lymphoma Foundation in collaboration with FLF Super Supporter Patient Group. This activity is supported by an independent educational grant from Genmab and AbbVie. The funders had no input into the survey design or questions.