Introducing FL Voices: a new way to help shape the future of follicular lymphoma
FL Voices, is the Follicular Lymphoma Foundation’s flexible patient involvement network. Share your experiences, shape research, and make a difference.
Leah’s Story : Supporting Andrew Through Follicular Lymphoma
My name is Leah and my husband Andrew was diagnosed with Follicular Lymphoma in 2021, in his mid-20’s. It hit us both really hard. Since then, I’ve learned how to support him in the best way I can, while also managing my own emotional health because being the person caring for someone you love comes with its own emotional weight.
Could some people with Follicular Lymphoma Be Cured? New evidence sparks careful optimism
New long-term research is raising one of the most important, and sensitive, questions in follicular lymphoma: could a subset of patients already be cured?
Lauren’s Story
My name is Lauren, I’m 37 and live in Bay Area, California. I was diagnosed with stage 4 FL in 2026. I work in administrative support for a CPA firm. I have a little dog named George, who is essentially my child and means absolutely everything to me. He pretty much runs my life — haha.
I was recently proposed to, so I’m now engaged to my partner, Michael. We’ve decided to wait until after my treatment to get married so that we can fully focus on my health.
Busting the myth – “trials are for when nothing else works”
Our third myth busting article of the series, where we breakdown the common myths around clinical trials. This article looks at how clinical trials happen at every stage of FL.
Busting the myth: you’ll be a Guinea Pig trying something untested
Our final myth busting article of the series, where we breakdown the common myths around clinical trials with this article focusing on safety at each trial phase.
Brandon’s Clinical Trial Story
Brandon, 40 from Northern California shared his FL story back in December 2025, now six months on he shares his story and perspective of being a part of a clinical trial at Stanford University.
Myth: “You might Only Get a Sugar Pill?” The truth about placebos and follicular lymphoma trials
Our second myth busting article of the series, where we breakdown the common myths around clinical trials and placebo’s and share about clinical trial work supported the FLF.
Busting the myth: clinical trials are not just about treatment
Our first myth busting article of the series, where we breakdown the common myths around clinical trials and treatment and share about clinical trial work supported the FLF.
Science Simplified: Biomarkers in Follicular Lymphoma – can we better predict outcomes?
In this “Science Simplified” series, we’ll be sharing insights from the latest research presented at the American Society of Hematology (ASH) conference in December 2025.